Being Sick as an Entrepreneur with DMD

I’m normally never sick but when I am sick it throws my entire life in disarray. Without going into too much detail, I was sick from several different things at once and I was forced to put everything on pause for a few weeks. With my disease of DMD and my dreams of being an Entrepreneur, it put my entire mortality into perspective. Many of my friends and co-workers truly thought I disappeared off the face of the earth.

In the DMD community and those fighting other devastating diseases, each holiday, birthday, and new year is another gift and we never know when it will be our last. Any battle with the flu or pneumonia could kill us and any moment can be when our hearts stop.

Thanks to my family’s love and support, I’m back to normal and returning to my old habits with a new found understanding of embracing work life balance and where my priorities should be. I’d like to think I had an experience much like Don Draper had at the end of Mad Men before he came up with the I’d like to give the world a Coke campaign.

Don Draper Meditating

I have so many ideas for inventions, services, and companies that it’s tough choosing which to pursue especially knowing I have a deadly disease and treatments for me remain a year or two away.

We all like to think we’re invincible and nobody has work-life balance so why bother trying to achieve it, but stress is real and there’s a reason it leads to so many deaths. Even the best regret putting so much time in at the office. Dustin Moskovitz has a great article about this culture in Silicon Valley.

In startups, the anxiety of living up to your dreams, co-workers, and investors is more harmful than any customer complaint. We all want to be perfect even though perfect is impossible.

I hope everybody has an amazing 2016 and remembers to look back on what they accomplished in 2015. For me it was one of my best years ever- the Patriots won the Superbowl, I was chosen as a member of the first ever PPMD Adult Advisory Committee and served a huge role in the DMD community, finally started investing, and learned so much about coding, business, investing, startups, and finance.

I hope in 2016 to become fully financially independent, become fluent in Spanish, read more, travel more, and gain more experience as a public speaker

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